What is it like to live with vascular Ehlers-Danlos syndrome (vEDS)? This awareness video highlights some of the experiences of the community living with vEDS, the impact on their families, the importance of education and research, and hopes for the future. #REDS4VEDS | The Ehlers-Danlos Society
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"My Tata is how I got diagnosed with vascular Ehlers-Danlos syndrome (vEDS). Growing up in a primarily Hispanic and economically disadvantaged community in Arizona, me getting hurt and sick all the time was just me being “drama” or “not tough enough." 😀 But my grandpa believed me. Everyone said he “babied” me. But when it came down to it, he was the one taking me to appointments and the ER. He took me to THE appointment that got me diagnosed. I owe this all to him ❤️ believe POC patients!" - Da
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