Alberta siblings with rare, terminal disease finally have hope for a treatment
3:58
Alberta siblings with rare, terminal disease finally have hope for a tre…
Aug 10, 2023
Global NewsDestiny Meilleur
Family fighting for cure after daughter's batten disease diagnosis
2:32
Family fighting for cure after daughter's batten disease diagnosis
8 months ago
CBS News
Batten Disease
Batten Disease
May 8, 2018
nationwidechildrens.org
Batten Disease Program
Batten Disease Program
Apr 4, 2025
choc.org
Understanding Batten - Beyond Batten Disease Foundation
Understanding Batten - Beyond Batten Disease Foundation
Jan 7, 2020
beyondbatten.org
—Gelastic Seizures— Gelastic seizures are rare focal/partial seizures that begin in one part of the brain. They are often called laughing seizures.They look like forced smiles or a one-sided grin with bouts of uncontrolled laughter or giggling. Although the child may be smiling or laughing, it is usually in the absence of joy or happiness. The laughing usually sounds different than the child’s normal laughter (more forced and rhythmic). For some children it manifests more as mumbling or grunting
0:24
—Gelastic Seizures— Gelastic seizures are rare focal/partial seiz…
13.2K viewsMar 28, 2022
FacebookCLN1 Batten Disease, Hope for a Cure
•• Absence Seizures •• Absence seizures, sometimes referred to as “petit mal” seizures, are another common type of seizure experienced by children with CLN1. According to our survey data, 57% of the CLN1 population has them. Absence seizures are generalized seizures, meaning they affect both sides of the brain at the same time. They cause brief, sudden lapses in awareness, often with episodes of staring blankly. Because of this presentation, absence seizures are often mistaken as a child daydrea
0:21
•• Absence Seizures •• Absence seizures, sometimes referred to a…
39.6K viewsFeb 10, 2021
FacebookCLN1 Batten Disease, Hope for a Cure
1:54
A family's fight for a cure after daughter receives rare, terminal di…
8 months ago
MSNWQAD Davenport/Moline
Batten disease: Fears drug treatment may be withdrawn
Jan 29, 2025
channel4.com
1:36
Family fights for a cure after batten diagnosis
8 months ago
MSNWHAS-TV Louisville
4:21
What is Batten disease? Doctor and family share insights on rare cond…
Feb 27, 2025
MSNFOX 32 Chicago
0:11
Today is International Batten Disease Awareness Day 🧡 This mea…
7.1K viewsJun 9, 2023
FacebookOllie's Army Battling Against Battens
'We knew it was bad': Doctors say 4-year-old won't make it to teens du…
8 months ago
local12.com
3:31
What Is Batten Disease? 4-Year-Old Boy Receives New Drug For Neur…
Sep 8, 2017
International Business TimesPritha Paul
23:17
Ellery is diagnosed with a progressive and terminal disorder …
614.9K viewsDec 8, 2022
FacebookSpecial Books by Special Kids
1:41
Batten Disease: Why the Thoene Family Fundraises for BDSRA
1 views4 months ago
YouTubeBDSRA Foundation
2:01
Understanding Batten Disease and Its Impact on Families
29.7K views2 months ago
TikTok.amandadenise
0:59
memes and movies account on Instagram: "Not knowing is not a…
7.9M views6 months ago
Instagramnetflixnmovies
0:19
Confronting the Challenges of Batten Disease
14.3K views7 months ago
TikTok_ollies_army
Dealing with Grief: A Heartbreaking Journey of a Medical Mom
5.1M viewsJun 19, 2024
TikToklilymartin0131
memes and movies account on Instagram: "Him praying for his da…
6.7M viewsApr 16, 2025
Instagramnetflixnmovies
2:45
Batten Disease Explained
5.8K viewsAug 5, 2019
YouTubeCheckRare
3:40
Surviving the Bataan Death March
232.7K viewsMay 4, 2015
YouTubeDisabled American Veterans
12:45
Why Bats Carry Deadly Diseases
999.8K viewsMar 25, 2020
YouTubeSciShow
5:58
Sickle Cell Anemia: A Patient's Journey
758.6K viewsSep 7, 2010
YouTubeAmerican Society of Hematology
6:16
Sjögren’s Syndrome - Treatment | Johns Hopkins
205.2K viewsJul 19, 2018
YouTubeJohns Hopkins Rheumatology
1:26
Batten Disease | Living With Child…
NATIONALLY RATED HOSPITAL
About this channel
YouTubeNationwideChildrens
10:48
Weird Plague 'Cures' (The Black Death)
1.2M viewsNov 1, 2019
YouTubeSimple History
14:14
Finding Hope in Hopelessness | Peta Murchinson | TEDxSydney
364.7K viewsJun 14, 2016
YouTubeTEDx Talks
2:25
9,500 Miles to Hope | Tayla’s Batten Disease Journey
19.7K viewsOct 3, 2019
YouTubeNationwideChildrens
See more videos
Static thumbnail place holder