Leaning too far into joy or too deeply into sorrow is unrealistic, writes columnist Connie Chandler, who instead finds ...
U.K. experts developed consensus guidance to support earlier hip monitoring and individualized care decisions for children ...
A newly approved high-dose Spinraza regimen may offer added SMA treatment benefits, with similar safety findings to the ...
Guest writer Amal Khdour shares the story of her son, Hussein, who was born with SMA type 1. He is doing well after receiving ...
SMA is more common in wealthier countries, likely reflecting better diagnostic tools and treatment access, according to a ...
Columinst Helen Baldwin remembers her infant son, Jeffrey, and the difficult months he went through following his diagnosis of SMA type 1.
When forming a new friendship, columnist Connie Chandler hopes others see her first. But don't ignore the wheelchair entirely ...
Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.
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