Monthly Prescribing Reference

Edsivo Gets Breakthrough Therapy Status for Vascular Ehlers-Danlos Syndrome

Credit: FDA. Edsivo is intended to help patients with vEDS by promoting normal collagen synthesis in the blood vessels, and by shifting the pressure load away from the vessels most prone to dissection ...
Monthly Prescribing Reference

Edsivo Gets Priority Review for Vascular Ehlers-Danlos Syndrome

Pexidartinib is an oral small molecule that is believed to work by inhibiting colony stimulating factor-1 receptor (CSF1R). Vascular EDS is the most severe subtype of Ehlers-Danlos syndrome where ...
Healio

'It can be really bad': Vascular Ehlers-Danlos syndrome treatment options remain limited

Please provide your email address to receive an email when new articles are posted on . Ehlers-Danlos syndrome can be a devastating disease in patients who are severely affected — a situation made ...
Nature

Vascular phenotypes in nonvascular subtypes of the Ehlers-Danlos syndrome: a systematic review

Within the spectrum of the Ehlers-Danlos syndromes (EDS), vascular complications are usually associated with the vascular subtype of EDS. Vascular complications are also observed in other EDS subtypes ...
Healio

Vascular Ehlers Danlos Syndrome for the Rheumatologist, Pt 2: Extra-Cellular Matrix Reloaded

We were unable to process your request. Please try again later. If you continue to have this issue please contact customerservice@slackinc.com. In this episode we explore ways in which the ...
Nasdaq

Aytu BioPharma Receives Orphan Drug Designation from FDA for AR101 for Treatment of Vascular Ehlers-Danlos Syndrome

ENGLEWOOD, CO / ACCESSWIRE / December 8, 2021 / Aytu BioPharma, Inc. (NASDAQ:AYTU), a specialty pharmaceutical company focused on commercializing novel therapeutics and consumer healthcare products, ...
Nature

Vascular Ehlers–Danlos syndrome, pixels, and high-definition clinical genomics | Genetics in Medicine

Clinical genomics in this 21st century has to arrive at a similar level of HD, whereby the nonexpert can easily appreciate the difference in quality between what we can offer now and a version that ...
The Pantagraph

Randi Edwards: On vascular Ehlers-Danlos syndrome, its heavy toll and the journey ahead

Vascular Ehlers-Danlos syndrome — a long name for a complex disorder that I don’t actually know much about. I do know that it is a connective tissue disorder, it is considered rare, it has no cure, ...
Yahoo Finance

Ehlers-Danlos Syndrome: Higher Prevalence and Unmet Needs Identified

Dublin, Jan. 28, 2026 (GLOBE NEWSWIRE) -- The "Ehlers-Danlos Syndrome - Market Insight, Epidemiology, and Market Forecast - 2034" has been added to ResearchAndMarkets.com's offering. The ...

Gut problems in people with a genetic disorder are not caused by structural problems with the esophagus, study confirms

A study, led by experts at the University of Nottingham, has found that persistent and distressing upper gut symptoms ...
CNN

Lena Dunham says she has Ehlers-Danlos syndrome. Here’s what it is

Responding to a paparazzi photo that captured her walking with her cane, Lena Dunham explained she has Ehlers-Danlos syndrome – a group of disorders affecting the joints and skin. “An Ehler-Danlos ...
Newsweek

What Is Ehlers-Danlos Syndrome, the Genetic Disorder Singer Sia Is Suffering From?

Prefer Newsweek on Google to see more of our trusted coverage when you search. Sia, the songwriter and performer known for such hits as "Cheap Thrills" and "Titanium," is almost as famous for her ...